A name for this and a new direction.....

I feel pretty good for once about all of this. We found out lots of information....some good and some bad.......but this doctor KNEW what was going on in Landry. Yeah! Someone who has knowledge about this. She finally gave it a name. He is IgG Immune Complex. This is very rare in children but happens in adults. The weird thing is it mainly happens to adults who take seizure medicine. She had never seen a child with this (but read about it) or have suffered through erythema multiform like Landry did. Once again, Landry is now up on a doctor's board to show others this. ha! This kind of cracks me up...hey I need a laugh right now:)

What he has is IgG antigens and not IgE antigens. Our Austin doctor had it wrong. IgG cannot be treated or prevented. It is a serious reaction that leads to kidney damage. This is why they were so concerned about Landry's kidneys with our very first reaction. His renal glands were failing thus causing extreme swelling. We are SOOOO lucky he didn't have permanent damage from that. He will not out grow this. We are to STAY AWAY from antibiotics at all cost. Unless we hit an illness that will hurt him more than an antibiotic would (nice huh?) To put him in the hospital and try an IV form of antibiotic is stupid in her book. Oral and IV are all the same in IgG patients! Didn't know that. We have been told different. Each time we give him something that he has already reacted to we are risking kidney failure and joint damage. Oh yea, joint damage is also a side effect of erythema multiform.

So what now?

She is very unsure of what he can take so she is sending us to an ID doctor. This is an infectious disease doctor. They deal with antibiotics and their complex structures all the time. She is taking an educated guess that we might could try Rocephin but not sure. This is our next step to see this guy. Also, IF we try this antibiotic Landry has to take steroids at the same time to hopefully trick the body into not swelling up.

To recap:
~He is IgG Immune complex.
~Avoid Antibiotics if possible. The illness has to be hurt him more than an antibiotic would before we can try one.
~See new ID doc as soon as possible to talk about a game plan.
~Try Rocephin with steroids. Watch his kidneys.
~Continue to stop medicine asap if we see any bumps.

There you go! Thanks for reading my novel and thank you sweet friends for praying with me. Today gave us a new direction and a little clearer answers on what is going on with my Lanny. I HATE that he has this but God is so much BIGGER than this. Right?

Going to Cooks Hospital in Dallas....

to meet our new Immunologist for Landry. This will be our 4th doctor now on trying to figure out a plan for Landry's allergy to antibiotics. The past couple of days I have had to reprint these horrible pictures (I won't share the really bad ones here) and sort through our past history so that this new appointment will go well tomorrow. I HATE dealing with this! Looking back at these pictures brings me to tears. I WISH more than anything Landry did not have this.

Casey put it right when he called it the "Pink Elephant in the Room" because we haven't had to deal with it that much (answered prayers!) BUT it is STILL here. We need to deal with this now in case we ever cross that day we need an antibiotic to help him through a bad illness. What will we do?

Anyway, tomorrow is hopefully a new chapter that brings new answers to this. (Landry on antibiotics)

Play Ball!

It's practice time for the team, Vipers! This year Luke has really started to get into playing baseball. I think he understands it a little better now. Plus, getting to be on the same team as one of his best friends sure doesn't hurt either. Saturday was a beautiful day to play ball! Landry and Walker (his brother from another mother)

We love that kids like our own!
Luke still isn't real sure how that ball is going to land in his glove. ha!

I loved seeing Casey teach Luke about swinging the bat. I have heard many stories of when Casey was a kid and his dad doing the same for him. Casey LOVES baseball and he certainly LOVES teaching his boys.

Batter up!

Walker up to bat!

Haddie served the Viper team drinks after practice. I don't think there could be a cuter little server than this!

Lauren and Landry watched Luke practice. Plus, a few tumbles down the grass hill, collecting rocks, etc. ha!

Then is was time to run around the bases as fast as you can.

Luke was not too thrilled about this but when he found out kool-aid was waiting for him afterwards he gave it his best.

I just can't think of a better way than to spend a Saturday watching these guys play baseball!

Good luck Vipers!

Monsters VS. Aliens

Friday while waiting for Daddy to fly in I took the 3L's and a couple of sweet neighborhood girls to the movies by myself. Yes, I was one brave woman. jk! They were perfect and I had so much fun with them. On the way home they even sang "The Wheels on the Bus" over and over......scream! Good times with the 3L's.