As most of you know, Landry is allergic to almost all (only a few left to try) antibiotics. He has a rare condition that is called IgG immune complex. This Tuesday we saw our 5th doctor to help us with his allergy.
(click on this to see past post of Landry's allergy)
Landry had an appointment in Dallas with an Infectious Disease doctor. This appointment was requested by our Pediatric Immunologist at Children's Hospital to help us come up with a game plan for Landry this fall/winter months. This appointment has taken 5 months to get in so you can imagine how ready we were to see this doctor! This ID doctor is supposed to find the molecular structure of certain antibiotic that she thinks will not react to his body.
I think having Lauren and Luke with us really helped him be ok about being here.
You know how the wait goes for the doctor to walk in that door. We had lots of giggling going on in that little room.
Thank goodness for an Iphone with applications!
The wait was really long.....
Well, things didn't go as planned. It by far was a waste of time....and that frustrates us. Three doctors were in on the consult. We went through his past history, hospital/ER visits, and past information from all the other doctors. The main ID doctor kept calling it the wrong name and saying things that went against what out Pediatric Immunologist has said. It took one of the doctors leaving the room to go call Dr. W (our ped Immunologist) to learn more about this kind of illness. They were clueless and seemed too scared to treat him if he got sick. After this one doctor told the main one everything WE and our Ped. Immun. had been saying she didn't have a clue as to what to give him. She just repeated everything Dr. W said.
The only thing NEW we found out is that from now on Dr. W wants Landry to be put in the hospital anytime he has an illness (strep, pneumonia, etc.) in order for her to "try" these last choices. It is too risky to treat him at home for fear of what can happen.
This new information has Casey and I kind of nervous....but in the same sentence I will say
that Our God is the Great Physician! I refuse to let fear take over us. We are still hopeful and now feel like we have the right MAIN doctor. Dr. W has been right about everything so far.
This is ALL in God's hands!
10 comments:
I didn't know. I will pray that he stays uncharacteristically healthy over the fall and winter months. And that Dr.W is granted wisdom beyond her training and abilities when dealing with Landry. And for peace for you as parents.
Oh goodness! I've never heard of that before. Poor little guy! I know that as a mom, you just wish you could make it all better and put it upon yourself so they don't have to go through it. *sigh*
The good news is that God IS the ultimate Physician and He doesn't need to do one single test. He already KNOWS it all. =0)
Praying for your family and especially for Landry. (love his name, by the way)
We will continue to COVER Landry Love in prayers!!! That you can count on for sure!
Wow, that looks painful! Poor guy:(
I'm praying.
♥ It's so frustrating when you go so far and don't get any answers! I completely agree with you on the "in God's hands" part! It's so true! I hope that they're able to find one that works for him!!!
Wow that is just craziness..... how scary.
Well he seems to be handling it with smiles and good spirit, but as a parent...SIGH.... the frustration, the fear and on and on and on.
What a beautiful family and as you put it .... its ALL in the GREAT PHYSICIANS hands!!!!
I am so sorry that was such a waste. I can only imagine how frusturated you guys are. But, you are exactly right you are in the hands of the Great Physician and He already knows your thoughts, concerns and fears. We will continue to cover Landry in prayer!!!
Robin - I feel ya girl. There is nothing worse than when the kiddos have....something...so frustrating. As you have prayed for my sweet Angel...I will pray for yours.
Marianne
Oh Robin, how frustrating for you and your family. I hope it is an easy "sick season" for him and nothing major has to happen. Hang in there!
Robin I'm so sorry... Your family is in my prayers if you need anything please let me know!
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